A few months ago I finally got the courage to go to my GP with my list
of ills................ she was great and arranged blood tests and
x-rays for my appointment at an out of town hospital... Myself &
Husband duly went along to see a really good Doc... after an hour long
appointment where we discussed the 2 surveys that we filled out prior to
the appointment then Doc says that she cannot confirm that I have
CFS/ME due to the many other issues I have that can cause fatigue and
pain... ( IBS, Under Active Thyroid, Osteoarthritis in both hips, a couple of prolapsed discs
in the lumbar region which of course in turn triggered the Chronic
Sciatica... there are quite a few other things too that you all probably
have or know of....) So less than two weeks later this letter arrives
saying I'm being referred to the sleep clinic because she thinks the
reason for the fatigue is sleep apnoea!!! Then this morning I get a call
from a lady ringing to arrange an appt for me at a hospital in the
Gloucestershire area then.... she realises she has all my details but
the name on her screen isn't mine!! but all the other details are ?? She
then apologises profusely and laughingly tells me to forget the phone
call! on top of that I get a letter in the post from the physio dept
telling me to go for physio later this month!! Physio?? It takes me all
the time to get up and go downstairs which is why I spend a lot of the
day upstairs in our home....Thank goodness for my wonderful wonderful
darling husband and great kids and my sister and brother-in-law and my
parents-in-law... Oh and my husbands fantastic boss who understands our
situation which started off with me going to our the GP and he diagnoses
me with a suspected cauda equina lesion/syndrome (he does tell me that
he really hopes he's wrong but better be safe than sorry) this is way
back in June 2010 and being sent to a local hospital who then refused to
do an MRI because they felt it wasn't necessary then me returning back
to the then GP still in a heck of a lot of pain, who insisted I have an
MRI so arranged one for me on a Sunday morning at another hospital!....
nice understanding staff? Not!! pushed me down and pulled my arms up
because and I quote "you're too fat to go thru the MRI so your arms have
to go straight above your head..." at this point I realised I was a
sufferer of claustrophobia!!! and get all panicky but then succeeded to
calm myself down and go thru the MRI which I was told would take 10-15
minutes but it turns out is it more like 35 to 40
minutes..Arms/shoulders very sore and back is feeling so bad I feel
faint... anyway this GP then moved on to another surgery and I started
to see a lady GP which is the one I have now but she is only available
on Thurs & Fridays... the rest of the week its take pot luck if you
get one of the other docs who are 4 ladies and 1 gent, Two of the
ladies are great, One is absolutely pathetic and puts every illness I
have down to my weight... and the Gent doc I've yet to see but my
husband took my daughter in for an appt and he was very off with an
emotional teenage girl.... so he his on my list of GPs to avoid along
with the lady doc previously mentioned.... So, now I guess I am on the
long journey of seeing all the different available consultants until
someone comes up with the suggestion that was given to me by a friend
who is a GP!! Will I finally be diagnosed with CFS/ME or Fibromyalgia?
and how many hospitals/clinics can I visit... ha ha ha ha ha ha, gotta
keep smiling
:D
L x
4 comments:
oh love huge hugs :( you do so well to go through all that and still keep your sunny attitude
Keep on keeping on Lisa - you will get there eventually. I suppose I was lucky with a GP who straight away thought I had fibro', after a 4 month wait to see a rheumatologist they agreed with that diagnosis - did a barrage of tests just to rule out other things which they did all come back fine and that was that. To be honest I muddle along most of the time on my own - I try to get away with the minimum amount of prescribed stuff that I can - some days are better than others and am currently exploring various alternative therapies - Magnesium seems to be helping at the moment.
Hope you get some help soon - sleep apnoea could be exacerbating problems so hopefully you will get into the sleep clinic soon xxx
Hoping things get better for you very soon...
Best wishes for a diagnosis, finally - that must be so frustrating and exhausting, on top of everything else! x
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